Ресурсы
Семьи, заботящиеся о больном, можно поддержать самыми разными ресурсами: знаниями, советами, эмоциональной поддержкой, созданием сообщества и т.д.
Home page
Palliative Care Initiative, Inc.
Eng
Ru
It's very easy to be different, but very difficult to be better
7 Ways for Seniors to Reduce the Cost of Prescription Drugs
What Does Medicare Cover? Find Out Before the Bills Arrive
Get Medicare Advice From State Counseling Programs
WHAT DOES MEDICARE COVER? FIND OUT BEFORE THE BILLS ARRIVE
Find a doctor, hospital, facility, or plan that accepts Medicare
Find local shops that sell covered medical equipment and supplies
What Medicare Part D drug plans cover
Medicare Coverage for Hospital Stays: Inpatient vs Observation Status
What Medicare Does and Doesn’t Cover for Alzheimer’s Care
Medicare vs. Medicaid: What You Need to Know
Adult Day Programs Help Seniors Live at Home Longer
The last five might be most similar to Marina’s goal of focusing on family & friends.
1.
Mentoring | Palliative Care Leadership Centers (PCLC)https://www.capc.org › palliative-care-leadership-centers
2.
UVA Named One of 11 U.S. Palliative Care Leadership Centershttps://www.uvaphysicianresource.com › uva-named-o…
(That was in 2015 so UVA’s ranking might have changed.)
3.
Palliative Care Organizationshttp://www.npcrc.org › content › Palliative-Care-Organi…
4. In Boston? :
Palliative Care Education and Practice (PCEP) | HMS Center ...https://pallcare.hms.harvard.edu › pcep › overview
5.
Palliative Care Course - Increase your knowledgeAd·https://www.oakstone.com/palliativemed/courses
6. This focuses on
medical
training, so isn’t quite spot on:
Palliative Medical Education - Palliative Care Online CourseAd·https://www.csupalliativecare.org/
And links more focused on education of family & friends of patients who are not health professionals:
7.
Understanding Palliative/Supportive Care: What Every ...https://www.caregiver.org › resource › understanding-p…
8.
Teaching Family Carers About Home-Based Palliative Carehttps://www.sciencedirect.com › science › article › pii
9.
Involving Family and Friends in Palliative Care for Persons ...https://academic.oup.com › book › chapter
10.
Educational Programs for Family Caregivers in Palliative Carehttps://www.omicsonline.org › open-access › education…
11.
Palliative Care Education for Everybody - IntechOpenhttps://www.intechopen.com › chapters
A Halping Hands from CancerCare
1.
Alliance for lung canceradvocacy support and education (ALCASE)
2.
American amputee foundation, Inc.
3.
American Association of Retired People (AARP)
American Brain Tumor Association (ABTA)
American Cancer Society (ACS)
American Chronic Pain Association (ACPA)
American Foundation for Urologic Disease (AFUD)
American Institute for Cancer Research (AICR)
- nutrition
American Liver Foundation
American Lung Association
American Academy of Pain Medicine
R. B. Bloch Cancer Foundation, Inc.
Brain Tumor Foundation for Children, Inc. (BTFC)
Cancer Care, Inc.
Cancer Hope Network
(попросить их волонтеров посмотреть ресурс и/ или послушать меня)
Candlelighters Childhood Cancer Foundation (CCCF)
Children’s Brain Tumor Foundation
(CBTF)
Children’s Hospice International
Children’s Organ Transplant Association, Inc.
Colorectal Cancer Alliance (CCA)
Colorectal Cancer Network
CONVERSATIONS! The international Newsletter for Those Fighting Ovarian Cancer
,
Coalition
Coping Magazine
The Dream Foundation
Genetic Alliance, Inc.
Gilda’s Club Worldwide
The Group Room Radio Talk Show
- Health Education, A Caring Community & Support to Patients and Family Caregivers. Voice For Life®
Hill-Burton Free Hospital Care
- program run by the U.S. Government
Hospice Education Institute
- ICPCN provides information and education
Hospice Education Institute
International Myeloma Foundation (IMF)
Kidney Cancer Association (KCA)
The Leukemia & Lymphoma Society
Make Today Count
- Mid-America Cancer Center
Mothers Supporting Daughters with Breast Cancer (MSDBC)
Multiple Myeloma Research Foundation (MMRF)
National Alliance of Breast Cancer Organizations
(MSDBC)
National Asian Women’s Organization (NAWHO)
National Association for Home Care and Hospice (NAHC)
National Association of Hospital Hospitality House, Inc.
- temporary housing to families receiving treatment away from home.
National Brain Tumor Organization (NBTF)
National Breast Cancer Coalition (NBCC)
National Cancer Institute (NCI)
National Center for Complementary and Integrative Health (NCCIH)
National Institute Brain Tumor Society (TBTS)
National Family Caregivers Association (NFCA)
National Hospice and Palliative Care Organization (NHPCO)
National Lymphedema Network (NLN)
National Organization for Rare Disorders, Inc. (NORD)
National Prostate Cancer Coalition (NPCC)
National Self-Help Clearinghouse
Oley Foundation, Inc
- long-term parenteral and/or enters nutrition
Ovarian Cancer National Alliance
Partnership for Caring
(сайта у них нет)
Patient Advocate Foundation
(provides understanding managed care)
Ronald McDonald House Charities
Skin Cancer Foundation
Social Security Administration (SSA)
Support for People with Oral and Head and Neck Cancer
(SPOHNC)
United Ostomy Association
, Inc. (UOA)
Visiting Nurse Association of America
(VNAA)
Von Hippel–Lindau Family Alliance (VHLFA)
Vulvar Pain Foundation (VPF)
(help with chronic pain)
Well Spouse Foundation
Made on
Tilda